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NHS research up close and personal: ‘Research People’ site tells the stories...
Returned from half-term leave today thinking that I might write about the latest Care Quality Commission (CQC) patient experience survey. After a while looking at the results I began to think: is there...
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We need more than better chat-up lines to increase participation in research
‘Pedestrian freight.’ It is a term I had not come across until last week. I believe it is the phrase once used inside train companies to describe you and I, the commuters who throng with fortitude...
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The Academy reports on research regulation…and a reminder of the Guardian’s...
The Academy of Medical Sciences (AMS) today published its report of the meeting it held a few months ago, looking at progress with improving the regulatory of environment for medical research. I...
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Survey raises questions over NHS research
So it was an early start for me today, doing radio interviews for International Clinical Trials Day today. I’ll post the links to one or two when available. Here’s the press release from NIHR CRN...
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HSJ ‘Progressive Research Culture’ Award 2012: Open for entries
It’s that time of year again to get your local NHS Trust to enter this year’s Health Service Journal (HSJ) ‘Progressive Research Culture’ Award. This follows the success of last year’s award which saw...
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Clinical trials activity report for England highlights progress but much work...
The National Institute for Health Research (NIHR) CRN CC has today published its clinical research activity report for the final quarter of 2011/12. Some of the data and a good summary of what they...
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Cancer patient experience survey results show variations in access to...
The results of the annual cancer patient experience survey are out today. For those of us committed to improving patient access to clinical trials and other research, this year’s report is particularly...
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Research in the NHS: I couldn’t put it better than Cumbria Partnership NHS Trust
Recently I decided to ‘Follow’ as many of the NHS organisations (Trusts, CCGs etc) as I could find on Twitter. The main reason was that as we ratchet up what we do around the patient access to research...
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It’s NIHR Friday: NHS Trust research activity stats published
You didn’t think I’d forget NIHR Friday did you? So the National Institute for Health Research Clinical Research Networks Co-ordinating Centre (NIHR CRN CC), together with The Guardian online, has this...
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NIHR gives ‘chapter one and verse’ on patients and the public in research:...
Forgive me. For once, I write with a semi-official hat on. But this afternoon feels like a bit of a milestone moment in lifting public involvement in research ever higher on people’s agendas. If you...
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Is it time to give patients the opportunity to self-refer themselves to take...
Harpal Kumar, the Chief Executive of Cancer Research UK, yesterday posted a blog about the new task force he is leading for NHS England on cancer diagnosis. The aim of the task force is to enable...
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Review of public involvement in NIHR published #ppiextramile
Hot off the presses: Almost a year to the day that the Director General Research and Development/Chief Medical Officer commissioned a strategic review of public involvement in the National Institute...
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Research in the NHS: I couldn’t put it better than Cumbria Partnership NHS Trust
Recently I decided to ‘Follow’ as many of the NHS organisations (Trusts, CCGs etc) as I could find on Twitter. The main reason was that as we ratchet up what we do around the patient access to research...
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From ‘spacewalking’ patients to Bowie, the literature on public involvement...
It’s one of the hardest things they will have to do. It is physically and mentally draining. For many it will feel a lonely place. The atmosphere will be unlike anything they have ever experienced...
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Have you joined the new online course revolutionising the way the public can...
I do not ascribe to the view that you have to be ‘scientific literate’ as a pre-requisite to taking part in science. In the same way that I do not think you need to be fluent in French before you can...
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National cancer patient survey raises more questions about patient access to...
The results of the National Cancer Patient Experience (NCPE) 2015 survey were published this morning. It’s an important insight into what people with cancer around the UK think about their care and...
View Article‘Sticking with it’– retention issues in public involvement and health research
This week I had the good fortune to be on the judging panel for the NIHR Clinical Research Networks/McPin Foundation/MQ 2018 award for service user and carer involvement in mental health research. It...
View ArticleNIHR publishes latest data on patient experience in research, provides...
Hats off to the National Institute for Health Research (NIHR) Clinical Research Networks who published the latest data on patient experience in research this week. They have now been tracking patient...
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